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The initiatives underpinning the Group’s strategic plan are as follows:

  1. Identify relevant information about the rare diseases and their treatment.
  2. Prepare common databases.
  3. Define a specific care itinerary for each rare disease.
  4. Develop a knowledge exchange platform.
  5. Share Best Practices, Cases Studies and other publications.
  6. Develop a clinical management tool.
  7. Collaborative studies. Evaluation of health outcomes.
  8. Develop risk models to be shared with the pharmaceutical industry.