The initiatives underpinning the Group’s strategic plan are as follows:
- Identify relevant information about the rare diseases and their treatment.
- Prepare common databases.
- Define a specific care itinerary for each rare disease.
- Develop a knowledge exchange platform.
- Share Best Practices, Cases Studies and other publications.
- Develop a clinical management tool.
- Collaborative studies. Evaluation of health outcomes.
- Develop risk models to be shared with the pharmaceutical industry.