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General purpose

To contribute to improving the management and treatment of rare diseases. Hospital pharmacists can contribute significant added value throughout the care process and help improve patient outcomes.

Specific goals

  • Generate and disseminate knowledge about the treatment of rare diseases.
  • Promote the conduct of evaluative research into rare diseases.
  • Encourage an appropriate and safe use of orphan drugs.
  • Evaluate and improve health outcomes in connection with orphan drugs.
  • Identify new ways of funding orphan drugs.
  • Promote a closer relationship between hospital pharmacists and patients with rate diseases and their associations.
  • Disseminate the knowledge generated by the Group through databases and publications.
  • Position hospital pharmacists as reference points in the treatment of rare diseases.